Monday, August 11, 2014

RIP - Robin Williams

No one is exempt from mental illness, no one. 

Today we lost a phenomenal comedian and human being. Robin Williams admittedly had a troubled passed and looked to have turned the page in creating a better life for himself. He had battled depression most of his life, but today lost the war.

As we all struggle with mental illness and its stigma, let us be reminded to fight the good fight and never give up. As long as we live, we are winning, regardless of how others see us. Support each other and remeber that you are never alone, no matter how dark and bleak things seem. Someone is there, reaching out their hand, all we need do is grasp it.

Though Robin Williams loss will leave a void, it will also shine a light on those of us still struggling. Be ready, tell your life's story, your struggles, your needs, and goals. 

Fight the good fight.

Wednesday, February 26, 2014

Way too soon for this

Written on February 28th, 2014

You'd think that I would be alright with close family being in the hospital, since we are there so much with my dad. That is not the case and I found it out rather quickly this past week.

We took my dad into the VA on thursday for a routine check before his pacemaker surgery. That went fine, but when we had the unscheduled appointment with his podiatrist, everything changed. I thought he had gangrene when I saw the wound on his foot. It turned out to be a combination staph and strep infection. By monday, he was in surgery to have the front of his foot amputated. He's now in an area of the hospital where he will stay several weeks for rehabilitation and therapy.

While all of this was going on, mom stayed at our place. When I saw her thursday morning I could hardly believe my eyes. She was very bloated from water weight and could barely move. Honestly, I have no clue as to how she got them ready, into the car, and drove to our place. Her energy level was at 0and it took all of that and my full assistance to get her from the driver's seat to the rear passenger seat.

By saturday, we were headed to the ER with her because she was markedly weaker and had become jaundiced. That freaked me out. She looked like a yellow version of the Pillsbury doughboy. 

Sunday, February 9, 2014

New Medication



About two months ago, I started taking a new medication. The hope was that it would reduce one of the side effects I've been experiencing. Unfortunately, that didn't happen and I've become emotionally unstable.

I had been taking Adderall, which is an amphetamine. What I've noticed about taking this medication is that it causes me to sweat profusely. In the hopes of curbing this, I was changed to Vyvanse, a new medication that extends release over a longer period of time. Adderall hits the system all at once, so there is an immediate burst of energy which then tapers off. Think of it like a sugar high. Vyvanse is an extended release medication which lasts throughout the day, doling out small doses throughout the day. The thought was that by going for the longer acting drug, the effects would not be as extreme.

You might wonder what the big deal is about sweat. This isn't the usual sweat that happens as I go about my day and differ my exertion. Nope, this is walk five feet after showering and getting dressed, only to have rivulets running down my spine and drenching the back my clean shirt kind of sweat. And, it is happening in the freezing cold of a Minnesota winter! Summer brings its own special kind of hell, with wet hair, sweat dripping from my face, and clothes so soaked that they feel like they've just come out of the washing machine. It is disgusting and I don't care for it one bit.

Changing medications did not work. In fact, quite the opposite has occurred. It feels as if it has stopped working completely. I'm still sweating profusely, and I haven't been sleeping well. I can't seem to quiet my mind and relax. I'm teetering on the edge of wakefulness, unable to tilt myself towards the dark abyss. Along with this, my emotions are cycling like crazy.

I don't know what to expect from one minute or hour to the next. Last night, I was excited to go to a friend's place for dinner and minutes later was frustrated and angry, lashing out at Jen because I couldn't find my shoes, which were in the closet where I was looking. Mere seconds later, I was crying and blubbering like a baby on her shoulder. Today wasn't any better, crying off and on, I hid in the bed with dogs so as to minimize any interactions with Jen. I know it's hard on her too and it makes me feel like crap when I hurt her in the process. Swinging rapidly between mania and depression is a struggle I'm not up to right now. I would really like it to go away, but that won't happen soon.At least I see my psychiatrist and therapist in the next couple of days to help me cope with this situation.

Here's to meds that work and better days ahead.

Touch

When you reach out your hand
I hold on with a vice-like grip.
It is my tenuous connection to reality
And without it, all seems lost.
I'm afraid that if I let go
I won't make it back.

When we hug
I don't want to let go.
So I hold on
As if my life depended on it.
Hoping that being close to you
Will keep the craziness at bay.








Wednesday, January 29, 2014

Bring Change 2 Mind

Check out this organization and take the pledge to help end the stigma of mental illness. You don't have to HAVE a mental illness to take the pledge nor to end the stigma of those who suffer in silence with one. It only takes one person telling another person, who tells their friend, who tells a relative... well, you get the picture, right?


bringchange2mind

Emotional rollercoaster

I'm still riding the emotional rollercoaster that has wreaked havoc on my system these past couple of weeks. Struggling to get them "under control" is not so easy. I could use more days off to help with adjusting sleep and medication schedules. This will definitely not be an option for me in the future. I'll stick with what is working well for me and do what I can to improve and manage the symptoms.

I can only try my hardest and hope for the best.

Monday, January 27, 2014

Frozen

Minnesota is in the grips of another arctic blast. Today the windchill will be around -40 and tomorrow won't be any better. Schools and businesses have closed for safety reasons, but others are still carrying on as usual. The only good things about it are that there are a few science experiments that can only be done in this weather (using a frozen banana as a hammer and throwing boiling water in the air and watching it evaporate instantly) and the sun is shining.

Winter is always a tough time when struggling with depression or bipolar. There isn't enough sun and we tend to isolate ourselves indoors because of the cold weather. Hibernation isn't a great option, as it tends to separate you even farther from your support system, you lose your job for being absent, and really, no one can sleep that long besides Rip Van Winkle and bears. Note, I didn't say I couldn't stay in bed that long, just sleep.
To try to offset the effects of winter, I boost the amount of vitamin D I'm taking, drink a lot more water and juice, and try to eat more fruit/vitamin C. This doesn't always help, but at least I feel like I'm working on ways to better the situation. The next thing I'm going to look at doing is getting some full-spectrum lights.

Full-spectrum lights contain more light waves than regular bulbs. They mimic sunlight and are used for those with SAD (Seasonal Affective Disorder). My understanding is that they help with the replenishment of vitamin D and K, those that are lost when the sun is farthest away from our hemisphere. Although I'm not a lights on type person, I prefer quasi-darkness, this is one thing that I think could make a difference during these long winter months.

That's it from here. How do you cope with the cold, loss of sunlight, and being stuck indoors for long periods of time?

Saturday, January 25, 2014

Oh the relief

I don’t think that I've ever been so happy for a two-week work period to be finished. There will not be another overnight remodel in my future for a very, very long time. It was one of the worst work experiences that I have encountered. Combine that with switching my medication and sleeping schedule and it was a recipe for disaster.

The mood swings and manic states were tough to manage, not only for me, but for Jen and others around me. Being out of control and trying to control things around me to create a sense of stability was a struggle. There were many times that I felt bad and had to go back to say I was sorry for my behavior. It has been a long time since those types of things have happened and I realize that I do not like feeling like this.

Jen and I were talking about how far I have come in being able to recognize and express how I am feeling. The past two weeks have shown me how far I have come in that department, but that I still have quite a way to go. It is good that I can see the progress, but oh so frustrating to also be able to understand that the road back is going to be a long and winding one.

Well, I guess I’ll follow some good advice and “put one foot in front of the other and soon you’ll be marching right along…”


Left step: get medication and sleep schedule back on track


Right step: start back on PT morning schedule


Left step: continue therapy
Right step: ??

Saturday, January 18, 2014

Overnight remodel

I have to say that this past week has been quite rough. Sunday, January 12th was the start of a two-week overnight store remodel. It wasn't mandatory, but I was sought out and specifically asked by both of my Assistant General Managers to assist in this project. I’m part of a 15 member team and there are only four of us that are of the female persuasion. This is a large remodel, affecting about a third of the store and three of the largest departments. It was an all-hands-on-deck type of project.

After being hospitalized and utilizing therapy, I understand more about why I've had issues with co-workers, management, family, and staying on task. I was ill-equipped to handle the day-to-day pressures of the work environment. For me, communicating with others was difficult. It was easier to show them rather than trying to “use my words,” which often left me stammering, searching, or speechless and absolutely frustrated. Emotionally, everything was black or white, love it or hate it, happy or sad, with no gray area in-between. When things are such polar opposites for so long, it is hard to find that middle ground. Being OCD, I could see how stuff fit together into a bigger picture, but it also meant that I wanted (and still want) to fix those items that I see screwing up the process of getting tasks aligned and getting us to the final objective.

I knew that this two-week remodel would be tough because usually employees put in anywhere between 45-60 hours a week. It has been several years since I have worked anything close to a full-time, 40-hour work week. Add on the stressors of working overnights, with people I don’t really know, lack of proper sleep, and shifting medications and those stressors go up exponentially. My therapist and psychiatrist aren't happy about it, but understand that reaching for a goal is part of personal growth. The fact that it is only two weeks, if it doesn't work I can go back to morning stock the next shift, and that I have promised to do everything I can to stay mentally healthy makes it an acceptable risk (just not happy).

To get things rolling, I needed to switch when I took my meds. That meant taking night meds in the morning and day meds in the evening. I also rearranged my sleep schedule, sleeping through the day so I could be up all night. Changing my sleep schedule also meant that I would see less of Jen for two weeks. If you've read any of my previous posts, you know that she is my rock. I don’t like our time together to be interfered with, because it is part of what keeps me mentally healthy and balanced. She calls me out when something is going awry and together we work to adjust and fix it.

Halfway through the first overnight, I was ready to call it quits. After working in multiple kitchen environments, I thought that there wasn't much that could shock or disturb me. For the record, I just want to state that I was completely wrong about that notion. The guys on the team were vulgar, obscene, and more profane than all of the kitchens I've worked in combined (and there have been many of them). What unsettled me even more was the fact that we still had customers shopping in the store while this was happening. Don’t get me wrong, I am no prude when it comes to vulgarity, obscenities, and a good dirty joke; working in a professional kitchen tends to bring out and accentuate that side of a person. However, like many things, there is a time and a place for it. I mean, would you talk that way in front of your mother or other older relatives, probably not. For them it seems that all of their filters for what is socially acceptable were left at home.

By the time I got home, I was over-stimulated and on sensory overload. All I could think about were a good “night's” sleep and some peace and quiet. A bit of each happened, but I wasn't the only one in the household whose schedule got messed-up; Jen slept very little and Da Boys were also restless on the first night. Everyone in our home needed R & R, not just me. It was going to be a long two-week stint if this was any indication. Luckily, things have settled out for most everyone. For me, I got progressively more tired as the week went on, sleeping longer and eating less. I struggled a lot with managing sleep, time with Jen, and eating.

We finished our first week of the remodel on Friday morning. I could not have been happier that we reached that milestone and I left the store to head home. My brain was fried, my body felt heavy and ached, and to top it all off, I was too tired to even know whether or not I was hungry. The only thing I wanted was sleep and lots of it. I was in bed by 8 am and didn't wake up until Jen woke me up at 8 am this morning. That was 24 hours of sleep and I still felt like I could sleep for another 24.

Now though, what I want to do is cry. Why? Because I’m tired as hell, emotionally drained, and have another week of this crap left to go. I know I should be proud of myself for persevering, but I just can’t do it right now. Maybe sometime in the future I’ll have a better attitude as I look back, its not going to happen while I’m in the midst of the project. This remodel has also shown me that I am still unprepared and a long way from being ready to work, let alone look for, a full-time job. Again, I know I should be proud of myself for how far I've come; I’m finding it difficult to see the light at the end of the tunnel and it seems like a never-ending uphill battle.

Perspective, that’s what it all comes down to right? Talk to you in a week or so...

Wednesday, January 8, 2014

Outed myself yesterday

Yesterday I sent an email out to a few relatives and friends to let them know that I was writing this blog. It was a bit nerve-wracking to hit the “Send” button and let it go. Likewise, this will give those around me that I love and care for a bit of insight into how my mind works and what I am feeling even when I can’t express it to them.

I’m hoping that this will start a discussion or two, but am alright with them just knowing that I am trying everything I can think of to improve myself and work with Bipolar disorder. There are always setbacks, but at least I am working at moving forward and lessening the effects of the symptoms of this disorder.

What about you? Have you ever shared something personal with friends or family? How did it go for you?

Monday, January 6, 2014

Media & Mental Illness

Quite often the media is to blame in the stigmatization of those with mental illness. We need to minimize the effects of these media dramatics and maximize the assistance given to those who suffer in silence.

This affects everyone in society whether they realize it or not. Until we accept this fact, the stigma of mental illness will only grow as people go undiagnosed and untreated.

http://mobile.nytimes.com/2014/01/05/opinion/sunday/kristof-first-up-mental-illness-next-topic-is-up-to-you.html?h=8AQFnnjyQ&s=1&enc=AZNhNV_klbxJCx3UN5Hvx2UM9pAfQqF0iNTLzp9NO0f_WnJzm7ig7TtQQ5ZnM_ZDv0k

Thursday, January 2, 2014

To be minimized and marginalized

http://m.huffpost.com/us/entry/4469035?ncid=edlinkusaolp00000003

Awake

How can it be that I miscalculated the necessary medication I need for sleep? Or that I can easily take a mid-morning nap, be stumbling tired at bedtime and not be able to fall asleep? Well, I went to bed early yesterday, but the new year still made it here. Now tonight I am wide awake while my fiance sleeps soundly in bed. It is crazy to think that a single medication can have such an effect on one's sleep.

The holidays always seem to mess me up. Strange sleep patterns, irregular work schedules, and dealing with family dynamics is enough to make me run to the bed and hide under the covers until it is all done. It was no different this year, except that we've added a wedding ceremony and the planning of said event to our to do list. Then, of course, in the midst of all this, I screw up my medication regime. I guess I need a personal assistant, no not Siri, a real live person, who says, "hey, you need to go get those meds today, unless you want to be awake for a couple days straight." Who am I kidding? I've got the meds set up in containers for the week, set the low or empty bottles on the counter to call for a refill, refill by phone/internet, get reminder calls when they are ready to pick up at the pharmacy, and have it in my phone's scheduler, yet I still manage to forget.

It's not as if I don't know the consequences of missing my medication. Sometimes it just seems as if my brain drops the call and then tells me there's no signal. I call them "brain farts", but actually it feels like temporary amnesia. Whether you remember again remains to be seen, and the more it happens the more I lose, which leaves frustrating memory gaps and things I know are there and should be able to recall, and are tantalizingly out of my grasp.

Right now, that's how it is with sleep, within reach of my fingertips, and oh so elusive, like trying to grab hold of a cloud. I can hear the pups, quietly wup, wup, wupping, running after some sort of prey, and Jen lightly snoring along side them in the bed. All of this is happening without me, as I sit in my 1960's corduroy swivel rocker writing this post. What I wouldn't give to be tucked under the blanket snuggling one of the pups.

It never gets easier, each day is its own struggle. There are times when you think you've finally gotten a handle on an issue and another pops-up out of nowhere. If you don't keep trying then you're dying. So, on I go...better at least attempt to sleep, I've got a busy day ahead.

Ah, to sleep, perchance to dream... - Shakespeare, I believe.